Tag: FARE

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OK, this is a bit morbid, but bear with me.

Most news stories about deaths from food allergies feature children or teenagers, maybe young adults in their twenties. You read about grieving parents. You rarely read about the 40-year-old who leaves behind a grieving spouse and kids.

Food allergies send a lot of people to the emergency room: 200,000 annually in the US alone according to FARE. Almost all are successfully treated. But people do die from anaphylaxis, roughly 63–99 each year in the US according to AAAAI.

So why are the fatalities we hear about so young?

Is it just demographics? Allergy prevalence has been increasing, after all, so kids are more likely to have food allergies than adults are.

Newsworthiness? A three-year-old dying at day care tugs at the heartstrings in a way that a 38-year-old dying from takeout doesn’t.

Is it onset age? A reaction is more likely to kill you if you don’t know about the allergy yet, don’t know you need to carry epinephrine, and don’t know that the warning signs mean “hospital now!” and not just “lie down and try to get through the asthma attack.” By the time you’re an adult, you’ve probably already encountered everything you might be allergic to, so you’re less likely to get that surprise first reaction. It happens – I’ve known people who developed shellfish allergies as adults, and I found my own nut and peanut allergies expanding their range in my early 20s – and there’s the Lone Star tick – but it’s less likely.

Are adults more careful? Teenagers take more risks. Children often have to rely on secondary caregivers who don’t always have the training or understanding that their parents do. And of course, the longer you deal with something, the more it becomes second nature. Is it that we’ve gotten better at avoiding triggers, keeping our medication on hand, and seeking treatment faster?

Are you more likely to have died of something else in the meantime? According to one NIH study, “Fatal food anaphylaxis for a food-allergic person is rarer than accidental death in the general population.” So the longer you live, as long as you’re taking precautions with the allergy, chances are that something else will kill you before the allergy can.

I suspect all of these are factors, but I do wonder how they balance.

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Today I joined hundreds of people at the CBS Studios in Los Angeles to raise money for Food Allergy Research and Education through the FARE Walk for Food Allergy.

We skipped last year and decided to join this year’s event at the last minute. Rather than walking along the shore at Long Beach, this year’s course ran through the CBS Studios lot. It started on what looked like a suburban New England street, and wound past production trailers, soundstages, prop storage, and even the Los Angeles river….

Walk for Food Allergy by the Los Angeles River

…such as it is. Other parts of the river are much nicer, even navigable at times, but this stretch is basically a concrete drainage ditch inside a bigger drainage ditch. It looks bleak now, but during flood years the channels fill completely, preventing the city’s streets from flooding instead.

Wait, Walk for What–Who–Why?

FARE funds studies to explore the causes of food allergy and develop new therapies. They run outreach programs to make it safer to visit restaurants, or just be at school or the workplace.

Food allergies can range from mild to life-threatening — yes, people die — and those of us on the far end of the range need to be constantly on the watch for hidden ingredients and cross-contact between foods we can eat and foods we can’t.

Continue reading →

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Bins of plastic pumpkins, some colored teal. The Teal Pumpkin Project logo is visible on the bin label.

Cool: Michael’s is selling plastic teal pumpkins for people who plan on offering non-food treats for allergic trick or treaters as part of the Teal Pumpkin Project. You can still paint a pumpkin teal, of course, but this simplifies the setup. (Are we really that close to Halloween already?)

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Teal Pumpkin

The idea behind the Teal Pumpkin Project is to offer alternate Halloween treats that aren’t candy, so that kids with severe food allergies can still go Trick-or-Treating. It started last year in Tennessee, and FARE picked it up and promoted it nationwide this year.

When I was a child, I always had to either decline or discard some of my Halloween candy because of my peanut allergy. Fortunately it wasn’t life-threatening for me at the time (that came later), so I could separate them out at the end of the night. A lot of kids develop severe allergies younger than I did, and a lot of them are sensitive enough that the risk of cross-contact — whether in the candy bowl or at the factory — is a major issue.

So in addition to candy, we picked up an assortment of pencils, plastic dinosaurs, hair ribbons and more, and kept them in a separate tray. We painted a fake pumpkin so we could keep it around (though we’ll have to go over it again with better paint or maybe a coat of primer next year), and set it out front where it could be seen from the street. (Update 2021: You can buy plastic pumpkins in teal from a lot of stores these days!)

I’m not sure how many of the kids who chose the toys over the candy did so because of allergies, but we had enough of both to go around.

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FARE Walk along Long Beach

This year’s route for the Walk for Food Allergy was a lot longer than last year’s, when we walked out along a jetty and back. That was a comfortable 1½-mile round trip surrounded by ocean. This was 1½ miles each way on a path along the beach, surrounded by reflective white sand, in the hot sun, with no shade. (Hey, at least it wasn’t last weekend, when it hit 99°F.) In fact, since the signs ran out about halfway there, a lot of us started to wonder if maybe we’d missed the turnaround.

Some families turned around early. We almost did, but spotted a sign on a table full of water bottles not far ahead, and we decided to go at least as far as the water. We asked the woman staffing it where the turnaround point was, and she told us that was it.

Wait, Why Were You Walking?

15 Million Reasons to WalkEvery year, FARE sponsors events around the country to raise money for research and education, and to increase awareness of food allergies. 15 million people in the US alone have food allergies — and for a lot of us, it’s severe enough to be life-threatening. FARE sponsors research into treatments and prevention, provides educational resources, and advocates for allergy-friendly policies and laws.

You can still donate through December 31 if you want to help!

We’ve been walking in the Los Angeles event for four years now. Our first year was in Santa Monica. It moved to Long Beach in 2012. That year the planned route was blocked by construction and it took about ten minutes to walk. Last year was the jetty, and this year we walked from the western end of Marina Green Park, across from Rainbow Lagoon, along the beach to the Long Beach Art Museum.

Obstacles

The registration area always has tables for the event sponsors: food companies with allergy-friendly samples, pharmaceutical companies that make epinephrine injectors (since that’s basically the only reliable treatment for an anaphylactic reaction once it starts), and local medical and support groups.

Bouncy SlideLately they’ve also had a bouncy obstacle course and slide for the kids. Last year, J (almost three at the time) desperately wanted to go through it, and we wouldn’t let him because we thought the walk was about to start any minute. Then one person after another went up on stage to talk, and we realized he would have had plenty of time, but then the walk did start. We told him he could go on it when we got back…but we returned to see it being deflated.

This year, we made an effort to get there early, and we didn’t bother pulling him out until everyone had left the stage and they were calling us all to the starting line. He went through the course more times than I could count. We didn’t drag him away until they ran out of people onstage and told everyone to head for the starting line. (Of course this year they kept it inflated afterward, but we were too tired and hungry for it to matter.)

Wrapping it up

We finished up the afternoon with lunch at The Potholder Cafe Too, which reminded us of Broken Yolk Cafe in San Diego. They specialize in all-day breakfast — many, many varieties of all-day breakfast — but have sandwiches and burgers as well. I think I know where I’m going to grab dinner when I go to Long Beach Comic Con next weekend!