Tag: FARE

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If you have food allergies, dining out is always a risk. We had a close call our first night in Chicago on a family vacation last month.

After a long day of travel, we got settled into our hotel room and went down to one of the hotel restaurants for a late dinner. It was a Sunday evening, around 9:30, and while the front desk had assured us that the restaurant was open until 11, that turned out to only be half true. The restaurant entrance was blocked off, but the kitchen was serving the full menu to a shared seating area that you entered through the bar.

We’d been concerned about finding food for our not-quite-two-year-old son. Kids’ menus are awfully limited these days, and very heavy on cheese, which he can’t eat. Chicken nuggets are fine once in a while, but only go so far on a ten-day trip. So we were pleasantly surprised to see a Sunbutter, jelly and banana sandwich on the kids’ menu. Because of my severe peanut allergy, we keep peanuts out of the house, so Katie goes to sunflower seed butter and almond butter for toast and sandwiches, and J loves it so much he’ll demand a taste if she’s eating it. Score!

After a very long wait, the waitress finally brought the sandwich, dropped it off saying, “Here’s your PBJ,” and left.

Wait, PBJ?

Katie tasted it, and it was in fact peanut butter.

Red alert mode engaged!

As I mentioned, I’m severely allergic to peanuts. We don’t know yet whether J is, but we didn’t want to risk finding out in a hotel in a strange city thousands of miles from home.

The waitress seemed a bit confused by the issue when we finally got her attention (all the while trying to find other things we could feed an increasingly-cranky toddler who thought he was finally going to eat), and we had to point out that yes, the menu specifically said Sunbutter.

They did take the sandwich off the bill, and replaced it with a plain jelly-and-banana sandwich. But it put us on alert for the rest of the week.

The really disturbing thing was that it wasn’t just any sunflower seed butter listed on the menu, but a specific brand, one whose purpose is to be a safe alternative for people who are allergic to peanuts. That’s like telling a diabetic that you have Clemmy’s sugar-free ice cream and handing them Ben and Jerry’s. Or giving someone Everclear to help with their dehydration.

We lucked out, because Katie caught it before J could eat any of it. Really, the restaurant dodged a bullet too: They could have served it to a family with a confirmed allergic child. Imagine how blindsided they’d be when someone silently replaced a peanut-free food with peanuts. Continue reading →

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From this week’s newsletter, Food Allergy & Anaphylaxis Network is funding a study on suppressing peanut allergy. I’ll be walking to raise funds for the organization next month, and this is just one of the reasons why.

We are pleased to announce that FAAN is funding a final phase of a clinical study focusing on the safety and efficacy of oral and sublingual immunotherapy in children with peanut allergy. The study is led by Robert A. Wood, M.D., a professor of pediatrics and international health and director of Pediatric Allergy and Immunology at Johns Hopkins University School of Medicine in Baltimore. Dr. Wood’s team aims to better understand the complexities of the mechanisms of desensitization and long-term tolerance. This final phase of the study will enable Dr. Wood and his team to conduct additional laboratory studies that may help researchers understand which patients will respond to these therapies.

FAAN’s Research Grant Program has awarded more than $5 million since 2004 to scientists advancing research in the field of food allergy.

Donate or join our team if you’d like to help!

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In two months, my family is walking to raise funds for food allergy research, education, awareness and advocacy. Here’s why.

For millions of people like me who have food allergies, the simple act of grocery shopping or eating out can be a minefield. Food allergies range from mild to immediately life-threatening, and while some treatments show promise at suppressing them, and emergency medication (if given right away) is usually effective, the only reliable course right now is avoidance.

That’s not as easy as you might think in a world where packaged foods seem to have 500 ingredients, and a lot of people (including restaurant cooks!) are unaware of or outright dismiss critical medical needs as simple preferences.

When I ask you whether your homemade cookies have nuts in them, or when I ask the waiter whether the salad dressing is based on peanut sauce, it’s not because I want attention. It’s because I don’t want to spend the afternoon in the hospital. Or worse.

To top it off, the medical community is still trying to nail down just what causes allergies. We know the mechanism: The body’s immune system detects a foreign substance, identifies it as dangerous, and overreacts to it, causing anything from tingling, swelling and hives to difficulty breathing and death. What we don’t know is why some people have this sort of reaction and others don’t. Again, there’s promising research being done, but we’re a long way from being able to say “Do X and not Y and you can prevent your child from developing life-threatening allergies.”

All these are reasons that my family is walking to raise funds for the Food Allergy Network. Their mission is to spread awareness, provide education and advocacy, and promote research into food allergies. You may have seen them in the news recently as they’ve pushed for state and federal laws encouraging schools to carry stocks of epinephrine auto-injectors — and allowing them to use them — so that children who experience a serious reaction at school can be kept alive.

The Los Angeles walk is coming up on October 21 in Long Beach, 60 days from now.

Please donate or join our team!

Thank you!

FAAN Walk for Food Allergy

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I subscribe to allergy alerts through FAAN. Normally I skim the notices to see if (a) the problem is something I’m allergic to and (b) the product is something I’m likely to buy or eat, or have already bought. A couple of amusing phrases jumped out in this one:

FISH ALLERGY ALERT

April 17, 2012

Nestlé Prepared Foods Company announced today that it is voluntarily recalling two hour codes of STOUFFER’S® Satisfying Servings Lasagna Italiano because the package may contain STOUFFER’S Stuffed Peppers. While the Stuffed Peppers are wholesome, the recipe includes Worcestershire Sauce—which contains anchovy as an ingredient–and there is no Anchovy allergen statement on the Lasagna Italiano package. Consumers who are allergic to fish should not consume this product.

These products were manufactured in December 2011 and, given their popularity, Nestlé believes there may not be much inventory left on supermarket shelves. However, Nestlé is asking consumers to check their freezers for STOUFFER’S Satisfying Servings Lasagna Italiano in the 19 1/8 oz. package, with UPC code 13800-44709. The possibly affected production codes include 1349595513R or 1349595513S. This information can be found on the “proof of purchase” panel, located on the right end flap of the package, below the ingredient statement.

If you find the codes on your product, please call Nestlé at 1-800-392-4057, or email nestlefrozenfoods@casupport.com for further instructions. Nestlé will provide a replacement coupon to those affected consumers.

(Emphasis added.)

There’s just something funny about the way they went out of their way to talk up the product even in the middle of the recall notice!

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The Food Allergy Walk went well. There was a good turnout, apparently the highest yet for the Los Angeles event, which is in its fourth year. According to the event website, they raised about $43,000 of the $50,000 they had aimed for, but that’s only online donations. They may get closer once cash and checks are counted. Thank you again to everyone who sponsored us! You helped us raise $1040.05 for the cause ($120 of it offline) between the two of us!

The route was one mile each way along the walking path behind the beach up to the Santa Monica Pier and back. It ended up being overcast and chilly, a far cry from the 77 degrees and sunny predicted a few days ago, but at least it worked out well. Afterward we went to Café Crêpe for lunch.

Funny/odd bits:

  • I wore a Flash T-shirt, and Katie put a Flash shirt on J. (We had him in the stroller.) We started off the walk next to a family wearing Superman T-shirts. For the record: we finished first.
  • The turnaround point coincided with the finish line of a 100-mile endurance walk/run, so on the way back we saw several thoroughly exhausted runners plugging away.
  • When we arrived, a huge section of the beach parking lot was cordoned off, with a half-dozen fire trucks (at least one marked Hazmat Response or Hazmat cleanup). One truck had its ladder fully extended in the middle of the lot, and they were pressure-washing something off the pavement from the top of the ladder. We never did find out what it was.
    A hazmat team power-washes the parking lot from a fully-extended fire engine ladder.
  • Not realizing how close the Third Street Promenade was (basically, we would have walked half of the route again), we moved the car afterward to one of several identical parking structures in downtown Santa Monica. This led to a strange moment as we were leaving, when we briefly thought someone had run off with the car…until we noticed that the signs said “structure two” instead of “structure four.” It also explained why the elevator we thought we had used earlier was marked “out of order.” (Hey, it seemed possible it had been closed within the last two hours.)