The Walk for Food Allergy that I’ve been plugging over the last couple of months was held this Sunday. We drove out to Long Beach to join several hundred other people in the walk to raise funds for the Food Allergy and Anaphylaxis Network. You helped us raise $1,342.15, putting our team into the top 5, and the event overall raised $45,360 before offline donations are counted. The money goes to FAAN and their mission to support food allergy research, education, awareness and advocacy. FAAN sponsors a series of these events throughout the year, so if you’d still like to make a donation, you can contribute through December 31.

Because food allergies are on the increase, a lot of the people affected by them are children, so there were a lot of families at the event. I remember last year featuring a stage and information booths for support groups, medical groups and allergy-friendly food companies like SunButter and Enjoy Life. This year they also had an inflatable slide and a rock climbing wall. (The organizer said that they moved it to Long Beach so that they could get that wall.)

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If you have food allergies, dining out is always a risk. We had a close call our first night in Chicago on a family vacation last month.

After a long day of travel, we got settled into our hotel room and went down to one of the hotel restaurants for a late dinner. It was a Sunday evening, around 9:30, and while the front desk had assured us that the restaurant was open until 11, that turned out to only be half true. The restaurant entrance was blocked off, but the kitchen was serving the full menu to a shared seating area that you entered through the bar.

We’d been concerned about finding food for our not-quite-two-year-old son. Kids’ menus are awfully limited these days, and very heavy on cheese, which he can’t eat. Chicken nuggets are fine once in a while, but only go so far on a ten-day trip. So we were pleasantly surprised to see a Sunbutter, jelly and banana sandwich on the kids’ menu. Because of my severe peanut allergy, we keep peanuts out of the house, so Katie goes to sunflower seed butter and almond butter for toast and sandwiches, and J loves it so much he’ll demand a taste if she’s eating it. Score!

After a very long wait, the waitress finally brought the sandwich, dropped it off saying, “Here’s your PBJ,” and left.

Wait, PBJ?

Katie tasted it, and it was in fact peanut butter.

Red alert mode engaged!

As I mentioned, I’m severely allergic to peanuts. We don’t know yet whether J is, but we didn’t want to risk finding out in a hotel in a strange city thousands of miles from home.

The waitress seemed a bit confused by the issue when we finally got her attention (all the while trying to find other things we could feed an increasingly-cranky toddler who thought he was finally going to eat), and we had to point out that yes, the menu specifically said Sunbutter.

They did take the sandwich off the bill, and replaced it with a plain jelly-and-banana sandwich. But it put us on alert for the rest of the week.

The really disturbing thing was that it wasn’t just any sunflower seed butter listed on the menu, but a specific brand, one whose purpose is to be a safe alternative for people who are allergic to peanuts. That’s like telling a diabetic that you have Clemmy’s sugar-free ice cream and handing them Ben and Jerry’s. Or giving someone Everclear to help with their dehydration.

We lucked out, because Katie caught it before J could eat any of it. Really, the restaurant dodged a bullet too: They could have served it to a family with a confirmed allergic child. Imagine how blindsided they’d be when someone silently replaced a peanut-free food with peanuts. Continue reading

In two months, my family is walking to raise funds for food allergy research, education, awareness and advocacy. Here’s why.

For millions of people like me who have food allergies, the simple act of grocery shopping or eating out can be a minefield. Food allergies range from mild to immediately life-threatening, and while some treatments show promise at suppressing them, and emergency medication (if given right away) is usually effective, the only reliable course right now is avoidance.

That’s not as easy as you might think in a world where packaged foods seem to have 500 ingredients, and a lot of people (including restaurant cooks!) are unaware of or outright dismiss critical medical needs as simple preferences.

When I ask you whether your homemade cookies have nuts in them, or when I ask the waiter whether the salad dressing is based on peanut sauce, it’s not because I want attention. It’s because I don’t want to spend the afternoon in the hospital. Or worse.

To top it off, the medical community is still trying to nail down just what causes allergies. We know the mechanism: The body’s immune system detects a foreign substance, identifies it as dangerous, and overreacts to it, causing anything from tingling, swelling and hives to difficulty breathing and death. What we don’t know is why some people have this sort of reaction and others don’t. Again, there’s promising research being done, but we’re a long way from being able to say “Do X and not Y and you can prevent your child from developing life-threatening allergies.”

All these are reasons that my family is walking to raise funds for the Food Allergy Network. Their mission is to spread awareness, provide education and advocacy, and promote research into food allergies. You may have seen them in the news recently as they’ve pushed for state and federal laws encouraging schools to carry stocks of epinephrine auto-injectors — and allowing them to use them — so that children who experience a serious reaction at school can be kept alive.

The Los Angeles walk is coming up on October 21 in Long Beach, 60 days from now.

Please donate or join our team!

Thank you!

FAAN Walk for Food Allergy

Someone once asked me if my food allergies — the ones that require me to carry emergency medication so that I can keep breathing if I eat something with peanuts — could be all in my head. I pointed out that they can be diagnosed by a blood test, and asked how my head could influence the results of a test on a vial taken to a lab three states away.

Allergies to nuts, grains, vegetables, seafood and milk are common. Allergies to meat? Much less so. But that’s starting to change.

A few months ago I read about adults (author John Grisham in particular) developing an allergy to red meat after being bitten by ticks.* And not just a low-level allergy like your face turning red — we’re talking full-on hives and anaphylactic** shock, the kind of thing that requires you to carry an Epi-Pen to make sure you keep breathing long enough to reach the emergency room.

Researchers have determined that the lone star tick’s bite can cause the body to produce an IgE antibody for a sugar called alphagal, which is found in mammal meat.

The result: from then on, you’re allergic to meat.

CNN calls it mysterious. Allergic Living calls it baffling. It’s certainly weird compared to “usual” allergies, and the fact that the reaction is usually delayed by a few hours makes it hard to diagnose, but we’re ahead of the game in understanding it: Unlike most allergies, we know what causes this one.***

With most allergies, we know the process, but we don’t know what gets the ball rolling to begin with. We know that in people who are allergic to a food, exposure to it causes an IgE antibody reaction that triggers a massive release of histamines that sends the body into some level of shock, but we don’t know why some people have that reaction and others don’t.

There are a lot of ideas being investigated, with varying amounts of supporting evidence, but there’s still nothing we can point to and say: “This caused you to be allergic to nuts” or “That caused you to be allergic to milk.” Advice to parents concerned about keeping their child from developing allergies is all over the map.

That’s why Katie and I are walking in this year’s Walk For Food Allergy. The event raises money for the Food Allergy and Anaphylaxis Network’s mission to support allergy research, spread awareness (you’d be amazed at how many people dismiss allergies as inconsequential or even bogus), provide education and advocacy for people living with food allergies.

Walks are being held across the country over the year. We’ll be walking in the Los Angeles event in October. If you’d like to help, you can donate or join our team here: [Edit: link removed since the event is over.]

Thank you!

*Naturally, this was a few days after I hiked a severely overgrown trail without taking precautions against ticks, so I freaked out a bit, but I also hadn’t found any ticks when I got home from the hike.

**Fun fact: Chrome’s spell-checker doesn’t know “anaphylactic,” and suggested such helpful alternatives as “intergalactic” and “anticlimactic.” Not sure about the former, but I get the impression a lot of viewers suffered “anticlimactic shock” when watching the Lost finale.

***Or at least we know what primes it. There’s still the question of why only some people who are bitten by the lone star tick go on to develop the allergy.